Surviving Dysautonomia
It’s taken me too long to ask for help, but now I need yours. I’m raising funds to help cover my medical expenses from Familial Dysautonomia, a rare genetic disease with no cure. I’ve created a fundraising page on Youcare, linked above, as well as adding a donate button to my Tumblr. If you can help please do, even if you can’t please reblog this so that someone else can. Thank you.

Hey all,
So my sister has been dealing with weird inexplicable medical issues her entire life. A list of allergies so long it shocks every doctor she sees, just the KNOWN food ones eliminate a lot of what humans eat: gluten, dairy, meat, eggs, shellfish, most citrus fruits, coconut, mushrooms. She has been slowly and then quickly losing her vision for about 7 years and is now legally blind with no physically detectable cause. She suffers from gastrointestinal problems, scabs on her scalp and forehead, postural orthostatic intolerance (she gets dizzy and often faints when standing or sitting), debilitating headaches, frequent cysts, chronic respiratory infections, and a bunch of other crappy crap that nobody’s little sister should have to go through. For years she’s been debilitated by these symptoms but doctors haven’t had a clue why and just kept telling her it was “all in her head”; “MIND OVER MATTER”. After the second episode this year where she became complete unable to sit or stand independently for over two weeks (it’s been a month and she still can’t stand or walk), I basically refused to stop taking her to the hospitals of NYC and bitching at everyone until someone took her condition seriously. But it worked! Kind of.
They think she has something called Familial Dysautonomia. Which is this really crappy crap disease that I don’t want her to have but DO want her to get treatment for. This disease is so rare that, from what our research has told us, there are only 2 treatment centers in the entire world. Fortunately, one of them is located here in NYC. Unfortunately, they need $1,800 up front just to run the tests. Without testing to confirm a diagnosis she can’t get treatment, disability, SSI, or any kind of help really whatsoever.
Additionally, she’s lost her job because she hasn’t been able to leave my apartment, let alone go to work, in over a month. So she has been living with my roommate and I and we have been supporting her and caring for her. I hate to say it, because I love my sister and I want to provide for her when she needs it without it being a problem, but it has been an enormous financial strain for me. So, Kat has started this fundraising page to help pay for her diagnostic testing, acquired medical bills, and food (because her copious allergies make grocery shopping INTENSELY EXPENSIVE).
If you guys know me at all you know that I will handle whatever shit life throws my way. But this one is a little beyond my power. I am begging my Tumblr family, and their Tumblr families, to help Kat out with however much you can spare. I cannot genuinely express how much your generosity means to me and to Kat. I have been often touched by the love on this site and I hope that it can come through for Kat now. PLEASE REBLOG WIDELY!!!










